A quarterly publication of the Autism Research Institute

The Autism Research Review International is quarterly publication of the Autism Research Institute

Privacy Policy

Privacy Policy

Privacy Policy Overview

This Privacy Policy applies to information we collect from persons, either electronically, via postal mail, in-person or over the phone, in connection with their relationship with ARI whether it be for a donation, a survey, registrants or participants in ARI webinars or any other ARI sponsored event, and users of any related services, applications or sites that link to this Privacy Policy (the “Services”). The Policy describes ARI’s collection and use of users’ Personal Information (e.g., information that identifies a specific person, including name, postal address, phone, email address, or payment information where that information is not otherwise publicly available.)  It also describes generally ARI’s  practices for handling additional information (e.g., interests, demographics and site usage) you submit through us or from a third party to the extent it is associated with a specific user or user account or device. By using this Site and/or the Services, you agree to the terms and conditions of this Privacy Policy.  If you do not agree to the terms and conditions of this Privacy Policy, do not use the Site or the Services. Services offered by the Autism Research Institute (“ARI” “us” or “we”) include all officially maintained and managed ARI websites (“the Site”), including  a variety of sub-sites and micro-sites such as  “AutismConference.com,” “Autismdonations.com” and a variety of other surveys, websites and sub-sites.

Nondiscrimination Policy: The Autism Research Institute does not discriminate on the basis of race, color, national origin, religion, gender identity or expression, sex, disability, veteran status, sexual orientation, age, marital status or genetic information in its programs, awarding of grants, and/or other activities.


ARI is a non-profit 501(c)3 entity. It is among the oldest autism science and research organizations in the world and is dedicated to funding research that makes a difference for individuals with autism and their families. ARI maintains strict donor information privacy policies. We take great care to ensure that unauthorized persons do not compromise your information whether it is submitted by phone, mail or online. Under no circumstances will we share or sell a donor’s personal information (see “Types of Information Collected,” below) with anyone else, nor will we send donor mailings on behalf of other organizations. ARI protects all personal information and will not share with any other organization or individual beyond the extent necessary to complete authorized online donations you have initiated.  ARI will not share information with telemarketers, nor do we use telephone marketing to solicit funds.  Phone numbers are only used when necessary to verify information.


ARI will never knowingly collect personally identifiable information from children under age 13.


Personal Information
“Personal Information” is the information that identifies you as an individual, e.g., name, mailing address, phone number, email address and credit or debit card number.

Personal Information You Submit
We collect Personal Information when you voluntarily submit it to us, including but not limited to when you submit a donation, register for or subscribe to certain events, participate in a contest, take a survey or participate in an online webinar.

Additional Information
“Additional Information” is any information that does not reveal your specific identity, such as browser information, information collected through Google Analytics, demographic information, and aggregated information; it may be combined with your Personal Information, and when we do, we treat the combined information as Personal Information.

Other Information You Submit
ARI collects Other Information when you submit it to us. It may include your age, gender, education, occupation, financial information, interests, photos, connections, and comments.
Other Information We Collect Automatically When You are Online

Personal Data
Personal data is collected when users provide personal information that is not publically available to ARI, for example by completing a survey or donating funds. The personal information that you provide must be true, accurate and complete and all registration details (where applicable) must contain your real name, address and other requested details.
Aggregated information, such as information on traffic patterns within the Site, is collected by ARI through various methods:


ARI uses the Personal Information collected from and about you for the purposes set forth below. Please note that we may use and disclose Other Information for any purpose, except where we are required to do otherwise under applicable law. If ARI is required to treat Other Information as Personal Information under applicable law, then we may use and disclose it for all the purposes for which we use and disclose Personal Information.

Information Made Public Through Use of Our Services and User Privacy Settings
Certain features on our website or other online services give you an opportunity to interact with us and others – for example: message boards, chats, and social media (Facebook, Twitter, etc). When you use these features, you should be aware that any information you submit, including your name, location and email address, may be publicly available to anyone, including other users, search engines, advertisers, third party application developers, and anyone else with access to our Online Services. We are not responsible for any information you choose to submit and make public through these interactive features.

ARI will never share, sell or trade your Personal and Other Information with other third party companies, groups, or non-profit organizations to directly market offers to you.
We only share your Personal and Other Information in these cases:

California Residents: If you do not want your Personal and Other Information shared with these third parties for marketing purposes, please let us know by contacting as described in the Contact Us section below.


Privacy Policy Changes. ARI may modify this Privacy Policy as necessary.

Means of Notice and Choice
This Privacy Policy is the primary means by which we provide you with notice and choice about our collection and use of your Personal Information. If we ask for specific Personal Information that will be used in a manner different from what is described in this Privacy Policy, we will inform you at the time of collection.

International Transfer
Your Personal Information may be stored and processed in any country where we have facilities or in which we engage service providers, and by using our products and services, you consent to the transfer of information to countries outside of your country of residence, including the United States, which may have different data protection rules than in your country.
Data Retention
We will retain your Personal Information for the period necessary to fulfill the purposes outlined in this Privacy Policy unless a longer retention period is required or allowed by law.

Linked Websites
Our Online Services may also be linked to sites operated by third parties (for example, YouTube), and may carry advertisements or offer content, functionality, games or applications developed and maintained by third parties. Some of these third party sites may be co-branded with an ARI logo, even though they are not operated or maintained by us. ARI is not responsible for the privacy practices of any such third parties, and once you leave our Site via a link, enable a third-party service, or click an advertisement, you should check the applicable privacy policy of the third-party site.


ARI uses industry standard administrative, technical, personnel and physical third-party measures to safeguard Personal Information in its possession against loss, theft and unauthorized use, disclosure or modification. No data transmitted over the Internet is guaranteed to be completely secure. It may be possible for hackers or other third parties not under the control of ARI to intercept or access transmissions or private communications unlawfully.

ARI cannot ensure or warrant the security of any information you transmit to us. Any such transmission is done at your own risk.


To access or modify your information and update your preferences simply contact us. (see below)


It is our desire to not send unwanted mail or email to our contacts and donors. Please contact us if you wish to be removed from our mailing list.

If you have comments or questions about our donor privacy policy, please call or write us.

Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116 USA
833-281-7165 ext. 2 (office)
833-281-7165 (fax)